Transition Resources - Pediatric to Adult Health Care
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- USDA’s “Teens Talk Diabetes Video” – In this video, teens present their situation with diabetes. They talk about how they reacted to the diagnosis, changed their lifestyle, and dealt with those around them. The main focus is that they don’t let diabetes interfere with their lives; they continue doing the things they like with a few modifications. Some discussion centers on partying with friends and drinking while staying responsible for blood sugar levels. Other topics include stress reduction and getting support from family and friends.
- Talking with Your Doctor
This video teaches teens how to effectively communicate with health care professionals so they can learn to take charge of their health. Length: 18 minutes
- This Is Health Care Transition
Growing up and becoming an adult is difficult for all youth, but it can be especially challenging for young people with special health care needs. This video was developed to help youth and young adults with chronic health conditions and their families become better prepared for adulthood, especially the move from pediatric to adult health care. Length: 29 minutes
- Health Care Transition: College & Beyond
In many ways, Jeff Walden is a typical college student, but in some ways he is not. He was born with a severe physical disability that has posed many challenges on his road to independence. This video explores the process of transition from pediatric to adult health care and the influences that have contributed to Jeff’s success. Length: 24 minutes
- Health Care Transition: Jim’s Story
Transition is never easy; however, this process is usually more difficult for young adults with special health care needs who have been receiving care from specialized pediatric treatment settings and providers. This video looks at how Jim and his family prepared for health care transition and their current efforts to complete the process. Length: 10 minutes
- Healthy & Ready to Work
This video highlights issues in the transition to adulthood for young people with disabilities and highlights young adults expressing their educational and career goals. Length: 2 ½ minutes
- Families are the Reason
This video was designed to inspire and inform families of children with special needs and the professionals who serve them. “Families are the Reason” puts Title V in historical context as part of the Social Security Act of 1935—a program to help mothers and children—and its expansion to include children with chronic illnesses and disabilities. Length: 8 ½ minutes
- The National Institute of Mental Health presents signs and symptoms of depressions, treatment options, and ways to locate services for help
- WebMD has a Q&A with a nurse, RN, MSN, and has online type 1 and type 2 diabetes support groups. exchanges.webmd.com/diabetes-exchange
- Joslin Clinic has separate discussion boards for adults with diabetes, for teens, and for the parents of teens with diabetes. All are moderated by health care professionals.
- DiabetesTalkfest.com hosts regular chats with some of the leading experts in diabetes.
- JDRF online support team – JDRF’s Online Diabetes Support Team website is provided for informational purposes only in order to provide information about Type 1 diabetes, and to share the personal experiences of volunteers related to type 1 diabetes.
- ADA’s teen and young adult message board provides an outlet for teenagers and young adults with diabetes to discuss unique and common issues related to their disease and to share solutions.
- Children with Diabetes has an on-line forum for parents of college kids or young adults with type 1 diabetes
- www.Juvenation.org is a social network created by JDRF for people with type 1 diabetes. Site users can create a profile, participate in online discussion groups and forums, create and comment on blogs, upload videos, and more. Juvenation is a place to share thoughts, concerns and tips about living with diabetes, learn about new gadgets and technologies, and connect with others who are living with the disease.
- TuDiabetes.com is a social network for people with diabetes and has about 6,000 members, including many young adults.
American Academy of Family Physicians
American Diabetes Association
- Thriving with diabetes: Down-to-Earth Tips and Easy-to-Use Advice to Get through the Day-to-Day Hurdles of Diabetes
- For Parents & Kids “Every Day Life”
Celebrities with Diabetes
Juvenile Diabetes Research Foundation
- Telling your roommate about diabetes
- Being a newly diagnosed person with diabetes in college
- Effects of Exercise, Illness, Stress, and Growth on Blood Sugar Levels
- JDRF snowboarder Sean Busby
- Driving and type 1 diabetes
- Clinical trial information
- Driving, alcohol, smoking and drugs
- Pregnancy Planning and diabetes supply guide
- Experts’ Advice to Parents of Teenagers with Diabetes
- How to Keep Open Communication with Teens
National Institute of Diabetes and Digestive and Kidney Diseases
National Institutes of Health
National Library of Medicine
- Follow this link for more on eating disorders.
- Florida Health Care Transition Services Task Force for Youth and Young Adults with Disabilities work group list of transition resources
- Healthy and Ready to Work
- Talking with Your Doctor and Other Health Care Professionals
- What Parents Need to Know about College Drinking
National Diabetes Education Program
- Quick Reference Emergency Plan for Hyperglycemia (see page 54)
- Quick Reference Emergency Plan for Hypoglycemia (see page 53)
- Tips for Teens with Diabetes: Dealing With the Ups & Downs of Diabetes
Medical Commission on Accident Prevention
- Medical Aspects of Fitness to Drive by Andrew Raffle. Medical Commission on Accident Prevention; 1995.
National Women’s Health Resource Center
- Care Coordination Transition Planning Tips for Annual Re-Determination and Transition Planning
- The Best Journey to Adult Life for Youth with Disabilities: An Evidence-based Model and Best Practice Guidelines for the Transition to Adulthood for Youth with Disabilities
- Transition to Adult Heath Care: A Training Guide in Two Parts
- Growing Up Ready resources:
- Pediatric Perspectives and Practices on Transitioning Adolescents with Special Needs to Adult Health Care fact sheet
- Florida Developmental Disability Council, Health Care Transition Initiative, University of Florida Online Training Program
- “Understanding Diabetes” by H. Peter Chase, MD, Barbara Davis Center for Childhood Diabetes
- Transitions in Care: Meeting the Challenges of Type 1 Diabetes in the Young Adult Period for Patients, Their Families, and Health Care Providers by Wolpert, Anderson, and Weissberg-Benchell. American Diabetes Association; 2009.
- Letting Go: A Parents’ Guide to Understanding the College Years by Karen Coburn & Madge Treeger. Quill Publishing; 4th Edition, April 2003.
- Don’t Tell Me What to Do, Just Send Money: The Essential Parenting Guide to the College Years by Helen Johnson and Christine Schelhas-Miller. St. Martin’s Griffin; May 2000.
- You’re On Your Own (But I’m Here if You Need Me): Mentoring Your Child During the College Years by Marjorie Savage. Simon & Schuster; July 2003.
- To find other health care professionals by state or zip code, visit the Recognized Physician Directory
- Organizations that have the authority to accredit or recognize diabetes education programs:
- Physician Finder
- Find a family doctor
- Find a diabetes educator
- Find a dietitian
- Locate a diabetes specialist, educator, registered dietitian, or other health care provider in your area
- Choosing a Primary Care Provider
- If you or your family is unable to see a physician due to the cost of care, there may be a local community health clinic in your area. These clinics generally are free or require a small fee: findahealthcenter.hrsa.gov (See more information under Health Insurance below.)
- Find out how long you will be covered by your parent’s health insurance policy. To learn about new health insurance options ask your doctor for a referral to a social worker and ask your school nurse for information. Find out if you are covered under COBRA. Under a federal law called COBRA (the Consolidated Omnibus Budget Reconciliation Act), employers (with at least 20 employees) must offer former employees, retirees, spouses, widowed spouses, separated or divorced spouses of current employees, and dependent children the right to temporary continuation of health coverage at group rates for up to 18 months.
- HRSA Health Centers (Health Resources and Services Administration)
Federally-funded health centers care for you, even if you have no health insurance. You pay what you can afford, based on your income. Health centers are in most cities and many rural areas. Visit findahealthcenter.hrsa.gov: type in your address and click the ‘Find Health Centers’ button to find health centers near you.
- To locate a support group, check with the nearest chapter of the American Diabetes Association, call a local hospital, or look in a local paper.
- Health Care Transition Initiative, University of Florida, Children’s Medical Services (CMS):
- Envisioning My Future: A Young Person’s Guide to Health Care Transition. Also available in Spanish.
- Workbooks: Ages 12-14, Ages 15-17, Ages 18 & up. Also available in Spanish: De 12 a 14 años, De 15 a 17 años, Edad 18 & up
- Now That You’re in High School. Also available in Spanish.