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NDEP is a partnership of the National Institutes of Health, the Centers for Disease Control and Prevention, and more than 200 public and private organizations.

Transition Resources - Pediatric to Adult Health Care

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Videos

  • USDA’s “Teens Talk Diabetes Video” – In this video, teens present their situation with diabetes. They talk about how they reacted to the diagnosis, changed their lifestyle, and dealt with those around them. The main focus is that they don’t let diabetes interfere with their lives; they continue doing the things they like with a few modifications. Some discussion centers on partying with friends and drinking while staying responsible for blood sugar levels. Other topics include stress reduction and getting support from family and friends.
  • Talking with Your Doctor
    This video teaches teens how to effectively communicate with health care professionals so they can learn to take charge of their health. Length: 18 minutes
  • This Is Health Care Transition
    Growing up and becoming an adult is difficult for all youth, but it can be especially challenging for young people with special health care needs. This video was developed to help youth and young adults with chronic health conditions and their families become better prepared for adulthood, especially the move from pediatric to adult health care. Length: 29 minutes
  • Health Care Transition: College & Beyond
    In many ways, Jeff Walden is a typical college student, but in some ways he is not. He was born with a severe physical disability that has posed many challenges on his road to independence. This video explores the process of transition from pediatric to adult health care and the influences that have contributed to Jeff’s success. Length: 24 minutes
  • Health Care Transition: Jim’s Story
    Transition is never easy; however, this process is usually more difficult for young adults with special health care needs who have been receiving care from specialized pediatric treatment settings and providers. This video looks at how Jim and his family prepared for health care transition and their current efforts to complete the process. Length: 10 minutes
  • Healthy & Ready to Work
    This video highlights issues in the transition to adulthood for young people with disabilities and highlights young adults expressing their educational and career goals. Length: 2 ½ minutes
  • Families are the Reason
    This video was designed to inspire and inform families of children with special needs and the professionals who serve them. “Families are the Reason” puts Title V in historical context as part of the Social Security Act of 1935—a program to help mothers and children—and its expansion to include children with chronic illnesses and disabilities. Length: 8 ½ minutes
  • The National Institute of Mental Health presents signs and symptoms of depressions, treatment options, and ways to locate services for help

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Online Discussion Groups, Forums & Message Boards

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Social Networks

  • www.Juvenation.org is a social network created by JDRF for people with type 1 diabetes. Site users can create a profile, participate in online discussion groups and forums, create and comment on blogs, upload videos, and more. Juvenation is a place to share thoughts, concerns and tips about living with diabetes, learn about new gadgets and technologies, and connect with others who are living with the disease.
  • TuDiabetes.com is a social network for people with diabetes and has about 6,000 members, including many young adults.

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Websites

American Academy of Family Physicians

American Diabetes Association

Celebrities with Diabetes

DiabetesHealth.com

DiabetesMonitor.com

dlife.com

Juvenile Diabetes Research Foundation

Lifeclinic.com

National Institute of Diabetes and Digestive and Kidney Diseases

National Institutes of Health

National Library of Medicine

Other

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Guidebooks, Toolkits, Tip Sheets & Checklists

National Diabetes Education Program

Kaiser Permanente

Medical Commission on Accident Prevention

  • Medical Aspects of Fitness to Drive by Andrew Raffle. Medical Commission on Accident Prevention; 1995.

National Women’s Health Resource Center

Other

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Books

  • “Understanding Diabetes” by H. Peter Chase, MD, Barbara Davis Center for Childhood Diabetes
  • Transitions in Care: Meeting the Challenges of Type 1 Diabetes in the Young Adult Period for Patients, Their Families, and Health Care Providers by Wolpert, Anderson, and Weissberg-Benchell. American Diabetes Association; 2009.
  • Letting Go: A Parents’ Guide to Understanding the College Years by Karen Coburn & Madge Treeger. Quill Publishing; 4th Edition, April 2003.
  • Don’t Tell Me What to Do, Just Send Money: The Essential Parenting Guide to the College Years by Helen Johnson and Christine Schelhas-Miller. St. Martin’s Griffin; May 2000.
  • You’re On Your Own (But I’m Here if You Need Me): Mentoring Your Child During the College Years by Marjorie Savage. Simon & Schuster; July 2003.

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Magazines & e-Newsletters

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Directories

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In-Person Resources

  • To locate a support group, check with the nearest chapter of the American Diabetes Association, call a local hospital, or look in a local paper.

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Spanish-Language

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